These projects involve diverse stakeholders working on the use and application of RWD, aiming to move toward building a learning health system.
Demonstration
Projects
Projects
Ongoing
PSP Readiness Framework
Helps apply PSP data to improve healthcare decisions
Presented work at the CDA Symposium (2023)
The CPHIN PSP project aims to enhance the acceptance of PSP data in decision-making by key stakeholders. By leveraging significant investments in PSP programs, the project seeks to unlock the value of collected data, address data gaps, and ensure consistency and usability of data variables for decision-making.
The PSP Real World Readiness Framework will soon be published for broader dissemination and include synthesized findings of the analysis as well as insights across programs.
Ongoing
Synthetic Data Network
A synthetic data system ready for use across Canada
Partners: AstraZeneca, The Ottawa Hospital, McGill Hospital
CPHIN is mobilizing this network in order to simplify operations, reduce redundancy, and support and foster connections between institutions and industry partners.
By enabling access to large, cross-institutional datasets, a centralized synthetic data network could facilitate valuable benchmarking and other analyses, streamline logistical data-sharing processes by eliminating the need for individual agreements, enhance analysis processes through access to cleaned and standardized data, and strengthen healthcare stakeholder relationships.
Past Projects
CAR T Landscape Project
Streamline CAR T therapy processes across Canada
Presented work at the CDA Symposium (2023)
Co-designed by CPHIN and various stakeholders, the project aims to improve CAR T therapy processes by addressing issues identified through interviews and a workshop. Key findings include challenges with referrer responsibility, data reporting and sharing, and capacity.
The project prioritized two solutions: creating a Referral Network to streamline patient allocation and developing a Data Registry for comprehensive Canada-wide CAR T data analysis.
